Search found 107 matches

by Cynaburst
March 29th, 2017, 12:39 pm
Forum: 2017 Forum topics
Topic: Great new educational resource for patients with HCM
Replies: 1
Views: 357

Great new educational resource for patients with HCM

Available as a website and as a free app for Apple and Android mobile devices.

https://hcmbeat.com/2017/03/25/new-educ ... -patients/
by Cynaburst
January 10th, 2017, 2:34 pm
Forum: In The News!
Topic: St. Jude ICDs vulnerable to hacking? FDA Advisory
Replies: 5
Views: 2551

Re: St. Jude ICDs vulnerable to hacking? FDA Advisory

I think that if someone tried hard enough, these devices can all be hacked. The thing is, would someone care enough to do it? And lastly, isn't it worth the risk if you needed the device to save your life?
by Cynaburst
January 10th, 2017, 11:34 am
Forum: In The News!
Topic: St. Jude ICDs vulnerable to hacking? FDA Advisory
Replies: 5
Views: 2551

Re: St. Jude ICDs vulnerable to hacking? FDA Advisory

The software patch seems to address many of the issues. Leave your Merlin monitor on!
by Cynaburst
October 24th, 2016, 11:40 am
Forum: In The News!
Topic: New blog post about ICDs and MRI
Replies: 6
Views: 2212

Re: New blog post about ICDs and MRI

Wishing you the best as your undergo your test. But do know that if you must have an MRI, you have options and UCLA is not that far away. If you read the blog entry, there is a link to the UCLA flyer advertising the availability of routine MRIs for those with older devices. And in the future, you ma...
by Cynaburst
October 24th, 2016, 9:06 am
Forum: In The News!
Topic: New blog post about ICDs and MRI
Replies: 6
Views: 2212

Re: New blog post about ICDs and MRI

Yes, the thing that led me to write this piece was the confusion I encountered when I was trying to learn about having the MRI at UCLA. I wanted to share all that I had learned as it is such a rapidly changing area.
by Cynaburst
October 23rd, 2016, 10:44 pm
Forum: In The News!
Topic: New blog post about ICDs and MRI
Replies: 6
Views: 2212

New blog post about ICDs and MRI

I wrote a blog about my recent experience with trying to get an MRI with my older ICD and how I found out that one day soon, I will have a MRI compatible device. I hope you find it informative.


https://hcmbeat.com/2016/10/23/yes-we-s ... -and-mris/
by Cynaburst
October 13th, 2016, 12:17 am
Forum: In The News!
Topic: St. Jude ICD Recall
Replies: 1
Views: 1257

St. Jude ICD Recall

See this blog entry below for complete details and so you can find out if you are affected, and what you should do about it if you are.

https://hcmbeat.com/2016/10/11/st-jude- ... cd-recall/
by Cynaburst
August 12th, 2016, 10:35 pm
Forum: In The News!
Topic: New Website about Hypertrophic Cardiomyopathy
Replies: 1
Views: 1300

New Website about Hypertrophic Cardiomyopathy

Hi All, I wanted to let you all know about a new blog and website about HCM that I have created. This site is both a collection of resources and news site with the latest about HCM all in one place so you don't have to go searching for it. There is also a resource page of organizations and websites ...
by Cynaburst
June 26th, 2016, 11:34 am
Forum: 2017 Forum topics
Topic: Has anyone here with an older ICD had an MRI?
Replies: 16
Views: 2007

Re: Has anyone here with an older ICD had an MRI?

Steinway - thank you! That is amazing news. Yes, I have heard something like what you have told me off the record from a friend who works at Medtronic. I have a Protecta XT ICD which was implanted in 2012 and my leads are: 5076 - 52 and 6947 - 65 My current understanding is that the 5076 is already ...
by Cynaburst
June 22nd, 2016, 7:01 pm
Forum: 2017 Forum topics
Topic: Has anyone here with an older ICD had an MRI?
Replies: 16
Views: 2007

Re: Has anyone here with an older ICD had an MRI?

Here is a paper published just recently and this is the conclusion: CONCLUSION: Long-term mortality following TLE is high, particularly in those with systemic infection, procedural complications, advanced age, and renal impairment. Retained fragments are a risk factor for CDI post extraction. http:/...
by Cynaburst
June 21st, 2016, 4:11 pm
Forum: 2017 Forum topics
Topic: Has anyone here with an older ICD had an MRI?
Replies: 16
Views: 2007

Re: Has anyone here with an older ICD had an MRI?

Lead extractions are FAR more dangerous than any dental procedure. Though I realize that is not what I asked about, I can tell you that lead extractions can be very dangerous and should only be done by an expert in an operating room with a cardiothoracic surgeon standing by. Not just any E.P. should...
by Cynaburst
June 21st, 2016, 2:46 pm
Forum: 2017 Forum topics
Topic: Has anyone here with an older ICD had an MRI?
Replies: 16
Views: 2007

Re: Has anyone here with an older ICD had an MRI?

I have one friend who almost bled out when her vein tore and had to have emergency open heart surgery. And I saw her with my own eyes the day of her surgery in ICU. For a routine lead extraction. She was seconds away from death. And I have heard of another death on the internet. It is no laughing ma...
by Cynaburst
June 21st, 2016, 2:12 pm
Forum: 2017 Forum topics
Topic: Has anyone here with an older ICD had an MRI?
Replies: 16
Views: 2007

Re: Has anyone here with an older ICD had an MRI?

To clarify - I have spoken to a nurse at UCLA. They will do the scan if it is ordered. Now, with my old leads and everything. In the future I may have my generator changed to one that is MR compatible, but presently it has at least 3 years left. And, I am not having my lead changed out unless there ...