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Getting ready for genetic testing/ Baby may need an ICD

Posted: June 6th, 2009, 3:24 am
by Mommy2LiamsHeart
I had my first implant when I was 17yrs old. I am now the proud mommy of a 7 month old blessing who may carry the gene for HCM aswell. If Liam carries the gene, we have been told that he will need an ICD by age 2 for preventative measures. Has anyone else had to deal with a child receiving an ICD so young?

Re: Getting ready for genetic testing/ Baby may need an ICD

Posted: June 8th, 2009, 6:38 pm
by Momof2HeartKids
Hi Liam's mommy,

You pic is so cute. Congratulations on your beautiful baby. I hope he is negative for the gene and an ICD for him isnt something you will have to worry about. My son was a very small 5 year old when he had his put in but I do know someone whos son was a baby when he got his put in. I can give you her contact information if you ever have to cross that bridge with Liam but lets pray you never do!

Re: Getting ready for genetic testing/ Baby may need an ICD

Posted: June 9th, 2009, 6:33 am
by Elizabeth Martineau
My prayers are with you and your whole family that this turns out just fine (:

Re: Getting ready for genetic testing/ Baby may need an ICD

Posted: June 10th, 2009, 10:55 am
by Rebecca
Prayers!

Re: Getting ready for genetic testing/ Baby may need an ICD

Posted: June 10th, 2009, 1:52 pm
by Mark
Prayers from this end too....

Re: Getting ready for genetic testing/ Baby may need an ICD

Posted: November 15th, 2010, 12:05 pm
by marcosr1120
Prayers from here.

Re: Getting ready for genetic testing/ Baby may need an ICD

Posted: November 15th, 2010, 7:04 pm
by freckles1880
More prayers from me. You can't have too many. At lease they know to look and test. For all of your family :hugg:

Re: Getting ready for genetic testing/ Baby may need an ICD

Posted: November 15th, 2010, 9:12 pm
by Greg a
.

Since it has been over a year since Mommy2LiamsHeart posted here is a quote from the family blog


Wednesday, March 31, 2010
Hooray... Liam is a healthy boy
Rewind a couple weeks to March 17, St Patrick's Day. After much anticipation, it was finally time for Liam's cardiology appointment to see what the future held for him. After a very entertaining time with the great Riley staff performing his EKG and Eco, we went into him appointment. Within just a few seconds, the doctor broke the news we had been waiting for since he was conceived... LIAM HAS A HEALTHY HEART!!!! According to the doctor and a colleague of his at the Mayo Clinic, there is only a 5% chance that he will ever show symptoms of HCM! Although I will continue to be a worried Momma every time Liam takes off running or wants to go play or swim, he will be able to lead a normal little boys life. Now it is time to start getting him ready to be a future Ohio State running back! hahaha