Can everyone with an icd expect to get a shock at some time

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Poppy
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Can everyone with an icd expect to get a shock at some time

Post by Poppy » April 25th, 2017, 11:19 am

I am wondering if some of you can enlighten me. It is now nearly a year since my event with VT. I have made quite a lot of progress since then. From having quite a lot of fatigue last summer to a gradual increase in strength during the Winter months. I now feel reasonably normal. Some of my meds have been reduced in strength and I have been allowed to stop the statins and have had various tests on the device itself.

The trouble is here in the UK is simply that the NHS don't really discuss your individual case. You tend to be on a conveyer belt. They stick the rubber bits on you, tell you that they are going to speed up your heart, which can be a bit painful, although it doesn't last long.
I have not had a shock and don't want one, but is there anyone out there who can boast on never having been shocked ? Would be interested to know. Thanks.

Poppy.

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freckles1880
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Re: Can everyone with an icd expect to get a shock at some time

Post by freckles1880 » April 25th, 2017, 11:26 am

Poppy wrote:I have not had a shock and don't want one, but is there anyone out there who can boast on never having been shocked ? Would be interested to know. Thanks.

Poppy.
From every survey that we have done it appears that most of us have never been shocked. I don't worry about that as when I do get the jolt I hope the unit just saved my life. The folks I worry about are those who get the shocks when they should not have. Not many but it is usually a hard time to follow.

wavhi
Bob

Medtronic-Visia AF implanted 7-8-2016 stayed with the with 6947 Sprint Quattro Secure lead. Original ICD implant 2-4-2009. ICD turned off 10-6-17 as stage 4 lung cancer taking over.
Major heart attack, carcinogenic shock and quad bypass 10-13-08 post myocardial infarction, old inferior MI complicated by shock and CHF, combined, Atherosclerosis, abdominal aortic Aneurysm, Seroma 7 cm, left leg. Stent in the left main vein 10-7-2014

My "Wardens" are my bride of 53+ years and my eldest daughter.

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4EverHopeful
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Re: Can everyone with an icd expect to get a shock at some time

Post by 4EverHopeful » April 25th, 2017, 10:44 pm

Hi Poppy,

I've had my unit since 2012 and have not received any shocks. As Bob stated, I believe that there are more of us on this site who have not received a shock then those of us who have.

If you break down the numbers between those who have been shocked as an "appropriate shock" vs a "non-appropriate shock", I believe that you will find that the "non-appropriate shocks" have been shrinking over the years due to more advanced technology or units now being implanted. That leaves the "appropriate shocks" which totally depends on each individual's heart condition, diagnosis, doctor's expertise, compliance to treatment, or sometimes a heart just misbehaving for no reason at all regardless of how well of treatment one receives, it's beyond our control and a mystery at times for sure...
Phyllis

God's prescription for the heart:
“Listen carefully to my words…let them penetrate deep into your heart,
For they bring life to those who find them, and healing to their whole body.”
Proverbs 4: 20-22

Non-ischemic DCM 09/11
PVCs, LBBB, leaky mitral valve
St Judes CRT-D (Bubba) 02/2012; (Bubba II) 09/2017
EF 20% 09/11; 25% 07/12; 35% 02/16
Failed PVC Ablation 11/12
Coreg 25, Zestril 2.5, Asprin, Aldactone 12.5, Lasix 80, Zocor 40, Levothroid 75
http://www.icdsupportgroup.org/board/vi ... 649#p87649

okapi
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Re: Can everyone with an icd expect to get a shock at some time

Post by okapi » April 26th, 2017, 6:26 am

Poppy wrote: I have not had a shock and don't want one, but is there anyone out there who can boast on never having been shocked ?
I think it is worth mentioning that while a shock is not exactly fun, it isn't worth getting anxious about it. It is over very fast and makes me feel a lot better instantly so I quickly move on to being most bothered about having just drained a bit of power from the battery. I was first zapped shortly after getting the implant before it had been properly calibrated and am in some ways glad that I then knew what to expect from the experience.

Poppy
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Joined: July 2nd, 2016, 4:34 pm

Re: Can everyone with an icd expect to get a shock at some time

Post by Poppy » April 26th, 2017, 12:47 pm

Thanks very much for your reassuring replies to my query,

Poppy.

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TruckerRon
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Location: Provo, UT

Re: Can everyone with an icd expect to get a shock at some time

Post by TruckerRon » April 27th, 2017, 11:26 am

Sometimes two people starting out with the same heart problems can end up with very different experiences with the D part of their device.

I'm in the LBBB group running around with a CRT-D implanted in my chest. Since my SCA and subsequent initial device being installed in Sept 2009, I have had no shocks. During the first year I had a few runs of VT that I was paced out of; adding Sotalol to my daily mix of pharmaceuticals eliminated those.

Others starting with the same problem have had different experiences; they have responded differently to their medications or have experienced other health issues, like needing heart valve replacements.
TruckerRon -- Received Minion I on 17 Sep 2009, Minion II on 26 Jan 2015

Non-ischemic cardiomyopathy
Medtronic Viva XT CRT-D
No shocks yet...
My intro is at: http://www.icdsupportgroup.org/board/vi ... 099#p57099

manplex
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Re: Can everyone with an icd expect to get a shock at some time

Post by manplex » June 16th, 2017, 10:14 am

Poppy ,
I thought I was in that group. At my last device replacement , which was 2 years ago and
after 20 years of no zaps, I was seriously thinking, why?
Lucky I kept it because 2 years later - - and they tell me the zaps were appropriate- all
17 of them! it probably saved me.
Would have gone on a while too if I had t gotten an amiodarone drip.
Harold

jan122016
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Joined: December 26th, 2016, 2:27 pm

Re: Can everyone with an icd expect to get a shock at some time

Post by jan122016 » July 7th, 2017, 5:47 pm

Hi,
I've had an ICD for 7 months and have gotten shocked 4 times. I just got a diagnosis of cardiac sarcoidosis as the reason for the ventricular tachycardia, so I have the ICD for a totally different reason. The standard treatment for sarc is steroids, and they have not been effective (6 weeks so far), as I'm still getting VT. Of course, since they said I could go back to my regular activities I was out doing 2 hour bike rides. I have an ablation scheduled for Monday.

I'm a little envious of you folks that haven't gotten shocked and aren't getting VT anymore. Keep up the good work!

The most ironic thing about this is insurance said my ICD wasn't medically necessary (it's being appealed ).

Jan

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