Finally some progress

All posts from Jan 1st 2011 to Dec, 31 2011

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Post by JR1966 » December 12th, 2011, 10:45 pm

annette8 wrote:Wow, Chrissy. Progress only because you persisted. HE HADN"T CALLED A SURGEON YET! Good grief.

Chrissy, :congratulations:
Totally agree,hadn't called the surgeon!!! curse^%#$

Chrissy,all the best for Thursday. consolsmile

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Re: Finally some progress

Post by Ozchrissy » December 12th, 2011, 11:15 pm

Thanks everyone, yes I think that is why my frustration level was so high. I had left two messages for him to ring me, and I know he had got them from his secretary. One of them I pretended to be having chest pains, this doesn't include my hissy fit last Friday, and he still didn't ring me. I think they put me into the too hard basket, he didn't know what to do, so he did nothing except order more bloods.

At least this guy at St Vincents has done a lot of removals of the leads, has a lot more experience and training, hopefully he knows more about this than he does.

I can google stuff and get answers to things that my cardiologist up here doesn't know about. For example with the cultures for fungal infections, it says they take from 7-14 days for them to grow, but he only ordered 5 day cultures. I have been able to find lots of information about Culture Negative Endocarditis, and I am not getting it off Google Health, but proper journal sources. Just gets me angry that he didn't even do any research about this, just spoke to this infection disease specialist, and then left it alone. I think the worst part is that he was avoiding me. He didn't want to talk to me because he didn't know what he was doing. Imagine if every doctor who didn't know what was wrong with someone did nothing, or kept floundering around hoping that the problem would just go away. I am sure this is how he was feeling about me.

Well looking forward to Thursday, whatever the outcome, at least I should get some answers and hopefully a plan of how we are going to deal with this.
“I am not what happened to me, I am what I choose to become.” Carl Jung

Diagnosed with cardiomyopathy in 10/99
LBBB & VT diagnosed Feb 06
Guidant Biventricular Pacer ICD inserted Feb 06: Boston Scientific Incepta CRT-D inserted May, 2012
Oesophageal Cancer, 2012, Gall Bladder & Septicemia 2014 resulting in VFib and severe heart damage
Bare Metal Stent May, 2012 Mitral Valve replaced 2015
Meds: Entresto, Bicard, Coralan, Eurtorxsiq, Frusehexl, Spiractin, Sigmaxin, Creon, Warfarin,
Appropriate Shocks for Ventricular VFib.

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Re: Finally some progress

Post by TruckerRon » December 13th, 2011, 12:05 am

JoeNH wrote:
mrag wrote:I"ve also seen SCD for Sudden Cardiac Death
Yeah .... the terms are interchangeable. I personally like "SCD" because it's pretty descriptive for the folks who don't exactly understand what a "SCA" really is. Of course SCD scares some folks too, as it probably should. Then there is the crowd who starts the argument with you, "If you were really dead, how could we be talking about it ? You just weren't dead enough."

I've heard that one myself personally, "You weren't dead enough." I thought that comment exhibited real insight. <rolling eyes to the ceiling>
William Goldman, in the Princess Bride, wrote:Miracle Max: Whoo-hoo-hoo, look who knows so much. It just so happens that your friend here is only MOSTLY dead. There's a big difference between mostly dead and all dead. Mostly dead is slightly alive. With all dead, well, with all dead there's usually only one thing you can do.

Inigo Montoya: What's that?

Miracle Max: Go through his clothes and look for loose change.
TruckerRon -- Received Minion I on 17 Sep 2009, Minion II on 26 Jan 2015

Non-ischemic cardiomyopathy
Medtronic Viva XT CRT-D
No shocks yet...
My intro is at: ... 099#p57099

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