Welcome NotinSF (Ben)

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Welcome NotinSF (Ben)

Post by freckles1880 » December 28th, 2012, 6:07 pm

NotinSF wrote:HI All,

I'm 40 and am scheduled to get an ICD in 2 weeks.

I was diagnosed with HCM about 10 years ago. Recently, I wore a holter monitor which recorded an NSVT. That, combined with fibrosis on a cardiac MRI was enough for my doctor to make the recommendation.


howdywelcome You have found the site with more than 2,000 ICD wearing members. We can give you information on our experiences with our implants. I am sure you have questions so please do ask them and we will do our best to give you the best answers.


Medtronic-Visia AF implanted 7-8-2016 stayed with the with 6947 Sprint Quattro Secure lead. Original ICD implant 2-4-2009. ICD turned off 10-6-17 as stage 4 lung cancer taking over.
Major heart attack, carcinogenic shock and quad bypass 10-13-08 post myocardial infarction, old inferior MI complicated by shock and CHF, combined, Atherosclerosis, abdominal aortic Aneurysm, Seroma 7 cm, left leg. Stent in the left main vein 10-7-2014

My "Wardens" are my bride of 54+ years and my daughters.

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Re: Welcome NotinSF (Ben)

Post by 4EverHopeful » December 29th, 2012, 2:22 pm

Hi Ben and howdywelcome

Glad you found us for there are so many here willing to answer any questions you may have. There are several who have HCM as well. Wishing you the best on your upcoming ICD implant! I know it can be nerve racking just thinking about it, but it is a wonderful life saving device that I find to be comforting to have on board:) consolsmile

God's prescription for the heart:
O LORD, You have examined my heart and know everything about me. You know when I sit
down or stand up. You know my every thought when far away. You chart the path ahead of me
and tell me where to stop and rest. Every moment You know where I am.
Psalm 139:1-3

Non-ischemic DCM 09/11
PVCs, LBBB, leaky mitral valve
St Judes CRT-D (Bubba) 02/12; (Bubba II) 09/17
EF 20% 09/11; 25% 07/12; 35% 02/16
Failed PVC Ablation 11/12
Coreg, Zestril, Asprin, Aldactone, Lasix, Zocor, Levothroid

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Re: Welcome NotinSF (Ben)

Post by NotinSF » December 29th, 2012, 9:07 pm

Thanks guys.

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Re: Welcome NotinSF (Ben)

Post by mykidsmom » January 2nd, 2013, 10:41 am

you hit the right spot when you landed here ben...the people on this site are amazing, knowledgeable, empathetic and always there for you....i knew diddly squat about my icd till i found this site and the help ive gotten has been only short of amazing...

welcome and all the best.!
I think.....Therefore I am.!!!!!

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Re: Welcome NotinSF (Ben)

Post by ClaireCal » January 6th, 2013, 7:46 am

Welcome NotinSF
It's a great community here.

Prolapsed Mitral Valve & Idiopathic Ventricular Tachycardia
Catheter Ablation 28-03-12
ICD Medtronic 23-04-12
Bisoprolol 2.5mg
Pregnant for Sept 2013


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Re: Welcome NotinSF (Ben)

Post by Eric » January 6th, 2013, 4:56 pm


Glad you found us. Hope you stick around for a while, there is a wealth of knowledge from all our members to be tapped into and also the group is made up of a great bunch of people. Take care and hope everything is going well.

Eric [bot]

Idiopathic CHF/ EF currently @ 53%, Low point 26%
St Jude ICD implanted 6/2008 Device changed 6/2009
1 Shock (innappropriate), ICD reprogramed 6/2010
Lead revision 3/2011 due to fractured lead
53 shock storm 4/21/2011 (Inappropriate)
ICD turned off May 20111 through 8/16/2011
Lead revision 8/16/2011
VT episodes starting in August 2012
ICD Changeout 2/25/2013 St. Jude Inspire Assura
Too many meds to count
Life is too short, live in the moment and make the best of it :)
Intro is here:http://www.icdsupportgroup.org/board/vi ... 271#p75271

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