Heart Disease For Dummies …or… Miracles can be fun

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Re: Heart Disease For Dummies …or… Miracles can be fun

Post by Mar » May 9th, 2012, 12:47 pm

Robo Pop,
You are a fantastic writer. Thank you for sharing your journey with us, I enjoyed reading every bit of it. :awesome:
Mary Ann (Mar)
Biotronic Lumax 540 DR-T implant May 2010
Open heart surgery Jan 2010
ICD implanted May 2010
1 shock in 2011
3 in 2013
current EF 10 to 15%
A Fib
Medications: I lost track


Re: Heart Disease For Dummies …or… Miracles can be fun

Post by Slowpoke » May 9th, 2012, 12:49 pm

Thank you Robo, realy good reading. Touched a lot of points we all can share. You have a great family. Thanks. Great analogy.

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Re: Heart Disease For Dummies …or… Miracles can be fun

Post by Helen » May 9th, 2012, 12:53 pm

Robo you are fantastic. I've been reading at least one book a week for the past 73 years... Some were dumb, some were great, and I've enjoyed reading more and more as I get near the 80 year mark.. Yours made me smile, made me laugh, made me cry and touched me so much because it was so personal, so meant for your ICD audience.... because we all feel each other's joy and pain in this so close family group. No one who hasn't walked in our shoes can know the fears, anxiety, pain, frustration, etc., etc. and also know how we get so happy to hear a good outcome of the story that has happened to one of our "bionic family".

Hey when I hit 90 will you please write my biography.... I'll even confess to all the bad, dirty, naughty, nasty things that I may have done when my heart was strong enough to do them...... :mutt:

I just love this story of yours and I pray you will be around for a long, long time so we can enjoy your writing more and more. Love, Helen
Snowflakes are one of nature's most fragile things, but just look what they can do when they stick together.

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Re: Heart Disease For Dummies …or… Miracles can be fun

Post by notvaporlocked » May 9th, 2012, 1:21 pm

Great story ROBO, I was so relieved to find out you survived :wink:

Man Prayer
I'm a man.... But I can change.... If I have to.... I guess.

Red Green Show

Loving with all your heart is the only way to love somebody, Otherwise its not worth all the trouble!
Cary Grant

May those who love us, love us. And those who don't love us - may God turn their hearts. And if He cannot turn their hearts, may he turn their ankles, so that we may know them by their limping. (From the movie, Keeping the Faith)

Medtronic Protecta XT (Second ICD), 3 leads (1 unhooked Fidelis) Sept 27, 2006, Feb 12, 2013

3 V-fib therapies. It works, I'm still here.

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Re: Heart Disease For Dummies …or… Miracles can be fun

Post by 4EverHopeful » May 9th, 2012, 2:44 pm

:xmasclap: :xmasclap: :xmasclap: :xmasclap: :xmasclap:

Bravo, Bravo, Bravo....what an inspiring story! After reading it, I would not even dare to give up for that would be a total disgrace!!

Thank you ROBO Pop for telling it:) It's one of hope, love, faith, determination, perseverance, family, adventure, all the elements of making a great story, and oh yeah, it's real life, true drama!!

God Bless you angel

God's prescription for the heart:
O LORD, You have examined my heart and know everything about me. You know when I sit
down or stand up. You know my every thought when far away. You chart the path ahead of me
and tell me where to stop and rest. Every moment You know where I am.
Psalm 139:1-3

Non-ischemic DCM 09/11
PVCs, LBBB, leaky mitral valve
St Judes CRT-D (Bubba) 02/12; (Bubba II) 09/17
EF 20% 09/11; 25% 07/12; 35% 02/16
Failed PVC Ablation 11/12
Coreg, Zestril, Asprin, Aldactone, Lasix, Zocor, Levothroid

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Re: Heart Disease For Dummies …or… Miracles can be fun

Post by Jim and Sparky » May 9th, 2012, 2:51 pm

Your kitty was just showing his love for you in his own special way.

And your moral is so right on target.

Thanks again for posting all of this.

MI 1/21/11; SCA's 2/3/11 and 2/4/11
I have a Boston Scientific Teligen ICD and a Boston Scientific Promus stent,
I guess my cardiologist is sort of a BS kind of guy.

Two rules to live by:
1) Don't sweat the small stuff!
2) It's all small stuff!

My Intro is on this page: http://www.icdsupportgroup.org/board/vi ... 917#p74917

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Re: Heart Disease For Dummies …or… Miracles can be fun

Post by Marie » May 9th, 2012, 3:47 pm

Thanks for posting your story Robo , who will play you in the movie I wonder ?

Marie x
Medtronic Maximo 11 DR implanted 24th Nov 09

Non Sustained Ventricular Tachycardia.

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Re: Heart Disease For Dummies …or… Miracles can be fun

Post by Ann Marie » May 9th, 2012, 5:44 pm

Thank you so much. That was a great read. I looked forward to every installment. Thank you for sharing with us. :balloons:
If you follow all the rules, you miss all the fun[background=][/background]

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Re: Heart Disease For Dummies …or… Miracles can be fun

Post by Eric » May 9th, 2012, 7:06 pm

Thanks for the read Robo... I have a question, one of my bucket list items is to eventually make it to the Rock Show in Tuscon one of these years. When I go, wanna hook up and raise some heck? LOL, we could go visit all of your penitentaries and give the nurses and docs a bad time? Whadda ya think? Maybe while we are doing it, we will push ourselves too hard and both end up in one of em. Boy I can see another novel already........Butch and Cassidy's last days. lmao4dx lmao4dx lmao4dx

Let me know.

Eric [bot]

Idiopathic CHF/ EF currently @ 53%, Low point 26%
St Jude ICD implanted 6/2008 Device changed 6/2009
1 Shock (innappropriate), ICD reprogramed 6/2010
Lead revision 3/2011 due to fractured lead
53 shock storm 4/21/2011 (Inappropriate)
ICD turned off May 20111 through 8/16/2011
Lead revision 8/16/2011
VT episodes starting in August 2012
ICD Changeout 2/25/2013 St. Jude Inspire Assura
Too many meds to count
Life is too short, live in the moment and make the best of it :)
Intro is here:http://www.icdsupportgroup.org/board/vi ... 271#p75271

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Re: Heart Disease For Dummies …or… Miracles can be fun

Post by Suzanne » May 9th, 2012, 7:54 pm

I finally had enough time this evening to sit quietly and read your last few chapters. I made myself a cup of coffee and asked my family to leave me alone, for a half an hour, so I could read quietly, undisturbed.
I have really enjoyed your writing and admire you even more now, than I did before. I love your honesty, compassion and attitude.
Thank you SO very much for sharing your story with us all ROBO Pop.
~ Suzanne ~

St Jude ICD and Lead Implanted Feb.20/09
8 Shock Storm March 21/09
Lead Dislodged, so Replaced with Medtronic Lead June 16/09
ICD and Lead Explanted Nov.23/09
Medtronic Reveal XT (Cardiac Monitor) Implanted Jan.25/10...explanted and new one reinserted on July 21/11

Cardiac Monitor explanted Sept.9/14

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Re: Heart Disease For Dummies …or… Miracles can be fun

Post by TruckerRon » May 10th, 2012, 12:04 am

So, are you going to sell this to Hollywood, Ballywood, or a Broadway producer?

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Re: Heart Disease For Dummies …or… Miracles can be fun

Post by Chicken Joe » May 10th, 2012, 9:15 am

Brilliant - thank you so much
Arrhythmogenic Right Ventricular Cardiomyopathy (diagnosed 2011)
Medtronic PROTECTA XT - implanted 21 Nov 2011
my intro : http://www.icdsupportgroup.org/board/vi ... &start=815

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Re: Heart Disease For Dummies …or… Miracles can be fun

Post by ROBO Pop » May 10th, 2012, 10:11 am

Thank you guys. It's satisfying to see so many of my peers enjoy my, mostly accurate, albeit rambling, adventure into heart disease. I hope that in some way it helps others on their journey. It certainly changes many of our lives dramatically and as you know can be difficult to face head on. Maybe next season I'll do the story of my vasectomy...

By the way, not only did I not get my hair transplant, but I lost most of what I had. I understand it may be a consequence of all the anesthesia.

Eric ~ I can only assume you are planning to visit the annual gem, mineral, and fossil show held in Feb-Mar. Just bear in mind, Tucson is a retirement community so we have a vast collection of fossils everywhere. The residents don't get excited about it. Let me know when you're in town and I'll give you a tour of all the hospitals.

Trucker ~ My eldest son is a writer/producer on the left coast, and lived the adventure with me. I would imagine when he's ready he'll produce something from his own perspective (the car key incident will be tinted differently I'm sure).
Broken Heart
Nobody has ever survived life, but I'm trying...
My story and sticking to it
http://www.icdsupportgroup.org/board/vi ... 97&p=91375

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Re: Heart Disease For Dummies …or… Miracles can be fun

Post by mikesmom » October 31st, 2012, 12:35 am

Medtronic ICD and Pacemaker June 2012
No activity ....No Shocks....so far
Meds: Lipitor, Coreg, Lasix, Aciphex, Vitamin D, Zolpimed.
Supplaments: Aspirin 81, Pottassium, Iron, CoQ10, Milk Tistle

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Re: Heart Disease For Dummies …or… Miracles can be fun

Post by Ozchrissy » October 31st, 2012, 9:15 am

Rob I have just read this for the first time, wish I hadn't missed it earlier, (think I was locked up in Hospital at the time) but I have seen it now and feel inspired beyond words. I can't believe what you went through with your heart. Talk about an inspiration I have printed off the whole thread and when I am having a "poor buggar me day" I can assure you that the laughter and guts and strength that you and your family displayed during your ordeal will make my experiences fade into insignificance and I will take a lot of strength and encouragement from you. Also have one or two giggles to put it all into perspective.


“I am not what happened to me, I am what I choose to become.” Carl Jung

Diagnosed with cardiomyopathy in 10/99
LBBB & VT diagnosed Feb 06
Guidant Biventricular Pacer ICD inserted Feb 06: Boston Scientific Incepta CRT-D inserted May, 2012
Oesophageal Cancer, 2012, Gall Bladder & Septicemia 2014 resulting in VFib and severe heart damage
Bare Metal Stent May, 2012 Mitral Valve replaced 2015
Meds: Entresto, Bicard, Coralan, Eurtorxsiq, Frusehexl, Spiractin, Sigmaxin, Creon, Warfarin,
Appropriate Shocks for Ventricular VFib.

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