So who knows about GOUT?

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mrag
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So who knows about GOUT?

Post by mrag » March 27th, 2016, 1:55 pm

I've gotten through life so far without an STD or HIV, but think some recent girlfriend passed on a case of gout to me. Anyone else have gout? Any problems with adding new drugs to heart related drugs? Do I have to tell any new or past partners about this? All new to me so I'm open to gathering information and insights.
"The greatest enemy of knowledge is not ignorance, it is the illusion of knowledge" S Hawking

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Colin Pearson
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Re: So who knows about GOUT?

Post by Colin Pearson » March 27th, 2016, 5:23 pm

Never had it but I know it is all about diet.

All those fine wines, rich processed meats and after dinner cheeses washed down with port contribute.

Start not eating or drinking them.

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mykidsmom
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Re: So who knows about GOUT?

Post by mykidsmom » March 27th, 2016, 6:53 pm

gout sucks....ive had it on and off since i was 21.....every dr has a different opinion on it.....when i was vegan for 13 years i was told it was probably because i ate too much red meat.....scuse me...when i was younger before i took a liking to white wine i was told it was something to do with my excessive drinking..(i did admit to drinking a lota water..) anyways to hell and back with the drs....what actually happens is the Uric Acid level in your body goes up...and i eventually after a whopping long session (6 months with my friend gout) got some medicine prescribed.....the med did NOT help..so i took to the internet...dr google in fact ..and decided somewhere along the line i was missing Magnesium in my diet...together with Vitamin D and low levels of potassium...(i had the Vit D and potassium confirmed) so the night i read this on the internet..i hopped out to the back garden..lowered my two bare feet and wrist (yes you can get gout in other places) into a very high snow bank....came in and started my own diagnosis treatment immediately and never looked back....if i think im feeling a bit iffy in the feet i soak them in epson salts.......NO more attacks...

this worked for me...the medicine the drs prescribed to lower the Uric acid is allopurinal 300mg daily...but since i actually managed to stop the pain ive reduced it to 100mg daily and still no pain..i really sympathize with anyone who has this..its godawful.....and you cant contract it by sexual contact hahaha
I think.....Therefore I am.!!!!!

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David882
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Re: So who knows about GOUT?

Post by David882 » March 27th, 2016, 7:40 pm

Mrag:
The Mayo folks got the low down on the gout.
http://www.mayoclinic.org/diseases-cond ... N-20019400
With Respect,
David

11 Sept 2012 / Idiopathic Ventricular Fibrillation
At about 2AM I started storming at home, and in the ambulance, and in the ER.
Sometimes I restated and sometimes I had to be defibrillated.
A number of times I went into arrest and stopped breathing.
External defibrillation count exceeded 18 and at some point the team induced a coma.
24 hours later I was revived and have never had another event.
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My diagnosis is still idiopathic.

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KansasAl
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Re: So who knows about GOUT?

Post by KansasAl » March 27th, 2016, 8:19 pm

Gosh mrag, I sure am sorry to hear that you've got the GOUT! Do you have pre-planned funeral arrangements in place? :mutt:

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Ozchrissy
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Re: So who knows about GOUT?

Post by Ozchrissy » March 27th, 2016, 8:43 pm

UM AH, I have had a couple of bouts of Gout, and it has happened when I have had an over abundance of shellfish. Now I don't know if it can be transmitted across the globe, but if it can I am the culprit who passed it on to you.

Seriously it is the worst pain I have ever experienced, and I have had a few godawful painful things happen to me. I had gout at Lauren's Engagement party and was so high on drugs for the pain I really cannot remember much of it, but my gout was under control and that was all that mattered. It is the pits, the only way I could really recommend to stop the pain is to cut the offending foot off.

I was also on tablets for it as well, but it still lasted over a couple of weeks. Helen seems to be the expert on this so I would take her advice about the mineral supplements. Thankfully I haven't had it for a few years now, so I will avoid contact with you for a while if you don't mind Al.
“I am not what happened to me, I am what I choose to become.” Carl Jung

Diagnosed with cardiomyopathy in 10/99
LBBB & VT diagnosed Feb 06
Guidant Biventricular Pacer ICD inserted Feb 06: Boston Scientific Incepta CRT-D inserted May, 2012
Oesophageal Cancer, 2012, Gall Bladder & Septicemia 2014 resulting in VFib and severe heart damage
Bare Metal Stent May, 2012 Mitral Valve replaced 2015
Meds: Entresto, Bicard, Coralan, Eurtorxsiq, Frusehexl, Spiractin, Sigmaxin, Creon, Warfarin,
Appropriate Shocks for Ventricular VFib.

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codman59
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Re: So who knows about GOUT?

Post by codman59 » March 28th, 2016, 6:54 am

Yes, Mrag, I had problems with gout long before I had any heart problems. The drug of choice that could just knock that uric acid out of one was called Indocid. However, this drug acts horribly with blood thinners, diuretics and other heart meds, I mean in a big bad way as far as diuretics are concerned (put me in the ER on one occasion). It also carried a risk of kidney stone formation.
My daily drugs include one called Allopurinol; recently had my dose cut in half to ease stress on kidneys, and he added colchicine (which I tolerate well with my other meds), that is normally just for flare-ups but used here as daily maintenance.... not as fast acting as indocid, but will work over a few days, far less interactions with other meds.
When I first started having bouts of gout in my late 20's/early 30's, I went to an ER doctor, thinking I'd broken bones in my foot, who refused to believe I could have gout and didn't do the blood test that would have easily shown it.... so the useless so and so put my foot in a cast. I thought the gout was painful before (in both the big toe joint and my ankle) but I really figured out what pain was after he put that cast on.
The pain of a bad case of gout can't be over-exaggerated; there is absolutely no way to find comfort, and pain meds did nothing for me. The only way I could get around the house was crawling on hands and knees while trying to keep my feet from touching the floor.
Luckily, when I went back to my family doctor, he asked if I'd had uric acid levels tested.... his eyes got quite big when I told him I'd had no bloodwork for it.
Anyway, once in awhile I have a slight flare-up, but now, knowing what it is, I can deal with it. From what I have read, they used to call it the rich man's disease (which I can assure you is not reality in my case), and there are various articles out there that blame it on your diet, others that disagree and say it's genetics.
Either way, it's not great fun. I've had attacks of it primarily in my big toe joints, but also in the ankles, knees, thumbs, and wrists.
Cardiomyapathy (reason unknown; suspect viral infection 1998), chf, gout, diabetes, asthma, bad hair.
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mykidsmom
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Re: So who knows about GOUT?

Post by mykidsmom » March 28th, 2016, 7:58 am

I think were living the same "gout Life" lol.. i was around 21, just married and hopped..and i mean hopped to the drs with my shiny red toe....and he told me id sprained it by wearing sky high shoes.....i kept saying...my dad says its gout..and hes going no one...and i mean no one at 21 gets gout..my attacks though last a long time....probably up to 5-6 months without let up and during this time they spread to both feet...ankles ..hands and wrists and partway up both arms..took years before the dr (and i mean any dr) would consider doing the Uric acid test..it was pretty sad though cos as the attacks got worse and lasted longer, id look out the window and see snow...and do happy dances cos id kick off my shoes and run out and plunge everything into a snow bank....and hold it in the snow as long as i could...instant relief....now the instant relief can come via soaking in the epson salts...

but this is the most awful pain i have so much sympathy for anyone experiencing it...nothing really helps...and the pain never really eases or lets off ...its constant..and even a bed sheet leaning against the gouty foot can cause extreme agony..
I think.....Therefore I am.!!!!!

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ROBO Pop
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Re: So who knows about GOUT?

Post by ROBO Pop » March 28th, 2016, 9:05 am

I've never enjoyed gout so keep your distance.

Look at the positive and stop being a whiner. At least it takes your mind off of your hemorrhoids. Oh, and from everything I've read, you can't get gout from inflatable dolls so no need to worry about your plastic partners.

Did anybody pick up on mykidsmom's claim when she was 21 she looked it up on the internet? Paaleeze, the internet wasn't invented then...just sayin
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mykidsmom
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Re: So who knows about GOUT?

Post by mykidsmom » March 28th, 2016, 9:23 am

i looked it up on the internet last year ya holy terror......jez.....and fyi...ive been on the internet...when it was Arpa Net?..my first online connection was with someone in South africa in the late 70s.... hahaha..

didnt know rags had piles....piles of rags?????
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ROBO Pop
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Re: So who knows about GOUT?

Post by ROBO Pop » March 28th, 2016, 1:48 pm

mykidsmom wrote:i looked it up on the internet last year ya holy terror......jez.....and fyi...ive been on the internet...when it was Arpa Net?..my first online connection was with someone in South africa in the late 70s.... hahaha..
Sweetie when those nice young men in white coats put the net over your head and drug you back to the home...well lets just say that's not the InnerNet, and the 70's would still have made 21 somethin in the rear view mirror whewsmile lmao4dx :big-hug:

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kiwiguy
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Re: So who knows about GOUT?

Post by kiwiguy » March 28th, 2016, 2:23 pm

Gout - First time commenter, long time sufferer.

Gout first appeared in my toe when I was in my late 20's and like others I thought I had a fracture. I've had a hate hate relationship with it ever since.

I learnt to control it well with voltaren, but over the course of twenty odd years I had taken so much voltaren, (pills, suppository's, injections) that when I had my heart attack the doctors said no more of that young man.

Would you believe that when I was laying in intensive care after my MI, my old friend gout decided to pop up in my elbow to check on progress. I think it was because they were drying me out with restricted fluids. With strictly no NSAID's allowed they eventually used prednisone to resolve the issue but left me in agony for two weeks as they wanted to deal with the MI issues first. (I think they thought that if I was going to check out anyway there's no need to deal with the gout yet.)

Anyway push forward a couple of years and I am on Allopurinol daily as well. I think Daily allopurinol is the only (drug)answer once you get repeated on going attacks. Its possible for people to get one or two attacks and never have more.
The other point to note is that when you go on Allopurinol, more often than not it will bring on a flare up, but once you get through that, well in my case anyhoo, it has kept the bastard away.

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mrag
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Re: So who knows about GOUT?

Post by mrag » March 29th, 2016, 2:35 pm

I do believe it fair to say the excruciating pain of a kidney stone has a evil twin, gout. Either of course, by comparison make women complaining about the mild discomfort of natural childbirth into simply wimps. God made it a trade off type thing. Women have the babies while 80 percent of gout sufferers are men. Men got the raw end of that deal. As Chrissy mentioned, with a proper gout flare up, self amputation is not to be considered an outrageous idea at all. In fact, in some cases probably a preferred solution.

Supposedly gout is mostly determined by genetics and to some extent as Colin mentioned "fine wines, etc.' Hardly anyone here knows what a fine wine is let alone drinks any. HOWEVER, as noted in the Mayo Clinic link above that David posted most of us here have a head start, there is also a connection between gout and .....1) Medical conditions including heart disease and 2) Medications as in diuretics and low dose aspirin. Ring any bells? So if you don't have gout now, you might want to read up and be a little forearmed. There is a chance gout can start slow and be a minor annoyance for a day or two. Almost like you just stubbed your toe. I even had a flag on my last blood test that my Uric acid level was elevated. If so, consider yourself very, very lucky. PAY ATTENTION AND IMMEDIATELY COUNTER ATTACK!

Alas I didn't. Dumb, very dumb move.

Apparently there are a number of treatment plans, not a lot of them involve quickly stopping the pain BTW. Right now I am to take .6mg Colchicine* twice a day until the gout flare stops. I then see the doctor again in 4 weeks assuming no gout flare ups. At that time he will probably start me on a lifetime of Allopurinal. The doctor claimed that starting Allopurinal while gout is 'active' can cause the gout to immediatey have a bigger flare up! Thus we calm and stop it first with the Colchicine. That's the theory anyway.

*I got a prescription for a 15 day(!) supply of supposedly generic Colchicine (that is 30 .6mg pills, 1 pill twice a day) at Walmarts using my Medicare prescription insurance. The base price was $198 (one hundred ninety eight) but a mere $170 with my insurance. Note, you only take 1 pill every 12 hours as "needed, stop as soon as flare resolves." I believe my "flare is resolved" so I've only need TWO of the 30 pills! I went online and got a coupon and was able to buy the prescription without my insurance at Walgreens for $80.

I could have also ordered online from my insurance carrier. The price for 30 tablets $245 (like $8 each) while the price for 180 tablets $346 ($2 each). Let me revise that. I just called back. Today's price with my insurance carrier is a 30 day supply is $337 while a 90 day supply is $482 !!! Yes, two different calls, two different sets of prices. I do have to point out on my second call the nice customer service rep was from Arizona and she was quite pleasant. Out of curiosity I asked her to price Cialis. She asked if that was twice a day. I said I could only hope. She said Cialis was not covered. Arizona, did we expect anything more? That is the reason the Mexicans will eventually build the wall.

If someone is ever near a Canadian pharmacy, perhaps one could ask "what is the price for 30 tablets of 0.6mg Colchicine?"
"The greatest enemy of knowledge is not ignorance, it is the illusion of knowledge" S Hawking

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ROBO Pop
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Re: So who knows about GOUT?

Post by ROBO Pop » March 29th, 2016, 3:21 pm

May I suggest you contact your local Home Depot and find out when they offer their free classes on grout. Could be beneficial and save you a lot of unnecessary expenses...
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Ozchrissy
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Re: So who knows about GOUT?

Post by Ozchrissy » March 29th, 2016, 4:39 pm

OK, my devious little mind is working overtime here. How do I pretend to have gout and con my doctor into giving me a prescription so that I can send the pills to you Al. This really sucks, reduced cost meds over there would be beyond my financial means. I only pay $6.50 for any prescription as I am on a disability pension. I just may limp into my docs and complain loudly about my gout next visit.

That is an outrageous cost for a necessary prescription.

This is what it would cost maximum for the same meds. It is subsidized by the Government, so in actuality you are subsidizing the cost of our meds over here. I doubt very much if our Government would be paying anywhere near the same price as you.

http://www.pbs.gov.au/medicine/item/3410L

http://www.pbs.gov.au/medicine/item/2600w-2604c
“I am not what happened to me, I am what I choose to become.” Carl Jung

Diagnosed with cardiomyopathy in 10/99
LBBB & VT diagnosed Feb 06
Guidant Biventricular Pacer ICD inserted Feb 06: Boston Scientific Incepta CRT-D inserted May, 2012
Oesophageal Cancer, 2012, Gall Bladder & Septicemia 2014 resulting in VFib and severe heart damage
Bare Metal Stent May, 2012 Mitral Valve replaced 2015
Meds: Entresto, Bicard, Coralan, Eurtorxsiq, Frusehexl, Spiractin, Sigmaxin, Creon, Warfarin,
Appropriate Shocks for Ventricular VFib.

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