until the doctors say you can raise it. Do use the arm, just don't go above your head.rogue2ironman wrote:Hi all,
My name is Cory and I'm 27. A week before my birthday this year and after about 2 months of different doctor visits, I found out I was diagnosed with HCM... Needless to say it was the LAST thing I was expecting when I first walked into the walk-in clinic hoping they would tell me that I was just out of shape and healthy enough to work out (the whole reason I went there anyways was because I wanted to get back in the gym after nearly a year of not going.. and I was having heart pain and fainted a couple times.. so I figured I might as well just check in with the docs to make sure it was all fine). I was embarrassed to run, or bike, or even hike with my friends because I had to stop so often from the pain.. They'd all just kinda laugh and tell me I was out of shape but I felt like I might have a heart attack.
With my EP, Cardiologist, General doc, and my cardiomyopathy specialist doctor all in agreement that I needed the ICD.. I had the surgery last week. I'm just finding myself SO frustrated and angry with it all. I'm tired of being tired.. I've been an athlete my whole life.. walking up the stairs to get to work shouldn't leave me so short of breath I have to stop in the bathroom so no one sees and put my hands on my knees.. not to mention the sharp pain from my outflow obstruction.
I'm not really sure why I turned to this website to be honest.. guess i just thought that it's nice to know so many others feel what I feel every single day. I've always been a really happy soul and the past couple months I've found that I don't feel happy anymore.. I'm frustrated with my heart and now I'm questioning my decision to get the ICD.. I hate it so much right now but I tell everyone I'm fine.
Am I going to feel this thing inside of me forever? Does anyone else's heart kind of hurt from where the two lead wires are?
It's been comforting reading your stories..
I hope the reason you joined us was to find out how we cope and where you can ask questions and answer others questions.
I sure you have researched HCM and here is a short explination from WEBMD:
"What Is Hypertrophic Cardiomyopathy?
Hypertrophic cardiomyopathy (HCM) is associated with thickening of the heart muscle, most commonly at the septum between the ventricles, below the aortic valve. This leads to stiffening of the walls of the heart and abnormal aortic and mitral heart valve function, both of which may impede normal blood flow out of the heart."
You can find more at this link HCM!
Your ICD is still very new and I am sure you have some pain, not too much I hope. I have had my unit for over 7 years and can feel the wires (leads) but they don't hurt.
Getting tired without doing much appears to be from your condition. Hopefully you will get relief from the ICD and proper medications. Once you go for your checkup in a few weeks DEMAND cardic rehab. That will get you into exercises you can do and things that should help improve your overall health.
Please read a lot on here and start a list of questions for us and for your medical team.